People who stare at my autistic son
17-May-2008
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People who stare at my autistic son

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Why PEOPLE WHO STARE at my autistic son like he's a purple alien from Planet Zarg?  Didn't your parents teach you any manners?  We know he is odd, and we know he can be noisy - but if he were in a wheelchair you'd give him no more than a quick glance, would you?

Don't be afraid - if you want to know about him, just ask!

My son Eben has what most doctors would call 'moderate to severe' autism and learning difficulties to match;  I would liken his general demeanour to a seven year old body with a very happy hyperactive four year old inside it!  Contrary to the oft-perceived stereotype he is outgoing, affectionate, chatty and loves meeting new people and going to new places.  He lost his hard won verbal skills at the age of four and now can't form words - but that doesn't stop him trying!  And he understands you perfectly if you keep things simple.  He is possibly the happiest little boy I have ever met and has a dimpled smile that makes everyone say "aaah".  So why, when we go out, do people insist on staring?

Admittedly, diving into a fountain fully clothed (because you think the mosaic tiles on the bottom make it look like a swimming pool) may attract a little attention.  As might stripping off in public, or obsessively sitting on drain covers, or licking railings.  Even I find these odd, but such behaviour certainly brightens the day (assuming there is a change of clothing to hand and the car is parked nearby).

a boy in a playground playing on a swing

The question I am asked most often is, “does he have a special talent?” Well, no – unless you count eating a full plate of pasta in under 30 seconds, or utter fearlessness of anything except small fluffy animals. When motivated (i.e.  he’s spotted someone with ice cream) he can sprint with astounding speed, but we are yet to harness this for any purpose, (or indeed in a straight line). Likewise, he is adept at chewing to pieces anything softer than reinforced concrete but this is only likely to prove useful in the event he needs to escape from a bed that has been tucked too tight.

He loves cuddles and touching faces, and giggles when he knows he is being cheeky (which is surprisingly often).  His best habit is making us laugh, and his worst eating sand.  Beneath the autism he is a delightful, fascinating little boy who is adored by everyone who knows him.

Parents of special needs children are delighted when someone asks about their child, because it is a chance to tell someone more than books ever can.  This is especially true of parents of autistic children.  We have all spent days dissolved in tears, but have spent many more being thankful our child is who and what they are and not what we once wished they could be.  The media quite rightly talks about the hardships of being a parent or carer, but it forgets about the pleasures.  It’s a cliché to say being with a special child is difficult but incredibly rewarding - but it’s true!  We don’t want you to think, “Oh that poor woman, how does she cope?  Thank goodness that’s not me”.  We want you to think, “Is her son autistic?  I wonder what his name is.”

If you are curious enough to stare you are curious enough to ask; come and say hello!  I know that approaching a special child can be scary – you’re not sure what to say or whether to talk directly to the child or to their carer.  So I’ll help you.

Always speak to the child first.  Their understanding is almost certainly better than their reciprocal communication.  If the child can’t (or won’t) respond the carer will do so for them – you’re spared any embarrassment and may well come away having learned something.

What would be embarrassing is to be caught staring!

By: Attila the Mum


Other sites that may be of interest

The National Autistic Society
The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs.

Autism Spectrum
Ten Things Every Child with Autism Wishes You Knew - A very enlightening article by Ellen Notbohm, a freelance writer and parent of a child with autism.


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Mikep, ignore the likes of starer and reality or whatever they choose to call themselves!(Tho I have a feeling starer and reality are the same sad git) They are pathetic lonely individuals with a lack of self worth, thats why they hide behind the internet in a sad attempt to gain attention, the likes of it have no idea how to gain attention in a positive way so it tries the shock method! And yes BOTH my children are autistic and so what? Thats my business! My sons 7 a musical genius who can bang out metallica on the guitar and jean michel jarre on the keyboard and my 9yr old daughter has a gcse level of understanding in biology. Far more useful then starey pants or realitypoos. The likes of which will never amount to anything, but I have a feeling they (or it) already know that. And as a mum who has ADHD can the cyberworld please give me a pat on back, I managed to type that all by myself.
*Digsy  25-Mar-2008 09:35

 
Reality .... (as you call yourself because you are too cowardly to use anything like your real name).

I would like to think that you might be deeply ashamed of your remarks but lowlife scum like you have no shame and no conscience, it is you who are the disadavantaged and deformed of society, you who should be locked up.

I suspect that site admin may remove your comment, but I hope they allow it remain as testament to your twisted sick mind, and to haunt you.

As Nikki said : "I suggest you be very careful about uttering such wordswords that could well come home to roost and haunt you to the end of your days."

The same applies to the comments made by Starer 06-Jan-2008 09:25
*MikeP  25-Mar-2008 08:04

 
Your child will never lead a productive life and is a drain on society, He should be placed in a long term care facility and left there with you and your estate to pay the bill. You kid is not "Special" because he can eat pasta in 30 seconds or point out people with ice cream. Most farm animals are able to complete the same tasks. People stare at your freak of a child, not due to rudeness but only to catch a brief view of the passing freakshow who on occasion slams his head into walls and messes in his pants.
*Reality  25-Mar-2008 03:40

 
Starer: if I have special needs because my daughter has special needs, then where would that leave your mother? I bet she's really proud of you. I can tell that she gave you a lot of attention. You sound jealous of a kid....awwww.
*Staring at Starer  29-Feb-2008 21:44

 
Exactly mama.Im a mum with adhd,the proud auntie of a niece and nephew who are both profoundly autistic and an even prouder mum of an autistic son and daughter.Two beautiful,talented children,what more could I ask for? Don,t let STARER offend you,IT obviously has issues,just ignore IT and the likes of IT.
*Digsy  04-Feb-2008 00:25

 
I think perhaps that "Starer" did not click on the link that says "Please read this before you post"; or maybe he or she simply chose to ignore the guidelines, as his comment descends into an obscene kind of cruelty to the parent of any autistic child reading it. I hope that "Starer" has an opportunity to change his or her mind through the experience of loving an autistic child; until that happens, I hope "Starer" stays out of public office and far away from my beautiful autistic son.
*Mama Reindeer  03-Feb-2008 23:03

 
Yeah absolutely Digsy . You are quite right. I should have risen above such an excrescence and treated it with the contempt it deserves.
*Nikki  27-Jan-2008 17:51

 
Starer:

you are obviously a throw back from the Nazis ...

I suggest you be very careful about uttering such words, words that could well come home to roost and haunt you to the end of your days.

You sad, ignorant little person.
*Nikki  06-Jan-2008 17:27

 
Why do people stare at your autistic kid? I'll tell you why. There it is galumphing along with its head high up in the sky, gorgeously unaware of anyone or anything around it. It is inviting others to stare at it. There we have the village idiot, clowning its way through life. If you think all this is unkind, so what. Parents with such children should have more control over what they do in public. They're a danger to all other road users, distracting one's attention. Perhaps the kindest and best thing parents should do when they take such children for walks in public is to put a paper bag over its head. It's the parents who have special needs, not the kid's. Wondering what its name is: it's Simple Simon. If you think this is unfair, tough! life is unfair and the sooner the kid learns it to be so the better, otherwise if they cannot control their emotions they should be locked up.
*Starer  06-Jan-2008 09:25

 
I have an autistic boy who is more on the aspergers end of he scale but boy, has it been tough? We are getting things together now, he is about to enter secondary school and he has been statemented so will get extra help which he so clearly needs, not just with eductional but very much emotionally too. He has severe OCD and dietary problems, thinking of you all.
Take care
Natalie
*Nat  06-Jan-2008 03:33

 
I had a friend in middle school who was autistic and she was a very talented artist who taught me to draw manga , she was also extreamely intelligent and a very caring individual .I was one of the only people in my class who would hang out wth her and talk to her and play cards with her , everyone else treated her like a leper- which was sad becuase if they had gotten past their preduduice then they could have made a wonderful friend.
*Luna_papilio  31-Mar-2007 01:28

 
I can relate so well to these comments- indeed why should they stare? However, they do. I have a nine year old boy who has a severe intellectual disability and severe autism and he is non verbal and boy is he noisy. 'Deeing' so loudly. As you can imagine - out life in public is 'real fun'. At first- I was always apologising and feeling really embarassed that everyone's 'peace' was being disturbed by my noisy son. Howver, we attended a function at a play centre for families with children with disabilities and you know what - there was not one stare or rude comment from anyone! And this convinced me - if these so called children with intellectual disabilities and special needs are polite to each other and so are the siblings/friends and families then this is indeed a microcosm of what our society should be like. And as Gandhi said- if you want change then start with yourself.
So when my family went to a park for a picnic- my son was, you guessed it 'deeing' and tapping and marching around in circles around the picnic table and what did we do- we followed him- myself, my husband, his brother and two sisters and my autistic son was laughing and thought it a real hoot that his family were playing with him. So perhaps- to start change- we need to be stronger- not more aggressive or violent - and show the world how WE all should behave.
*Christina  01-Jan-2007 04:50


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