People who stare at my autistic son
18-March-2010
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People who stare at my autistic son

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Why PEOPLE WHO STARE at my autistic son like he's a purple alien from Planet Zarg?  Didn't your parents teach you any manners?  We know he is odd, and we know he can be noisy - but if he were in a wheelchair you'd give him no more than a quick glance, would you?

Don't be afraid - if you want to know about him, just ask!

My son Eben has what most doctors would call 'moderate to severe' autism and learning difficulties to match;  I would liken his general demeanour to a seven year old body with a very happy hyperactive four year old inside it!  Contrary to the oft-perceived stereotype he is outgoing, affectionate, chatty and loves meeting new people and going to new places.  He lost his hard won verbal skills at the age of four and now can't form words - but that doesn't stop him trying!  And he understands you perfectly if you keep things simple.  He is possibly the happiest little boy I have ever met and has a dimpled smile that makes everyone say "aaah".  So why, when we go out, do people insist on staring?

Admittedly, diving into a fountain fully clothed (because you think the mosaic tiles on the bottom make it look like a swimming pool) may attract a little attention.  As might stripping off in public, or obsessively sitting on drain covers, or licking railings.  Even I find these odd, but such behaviour certainly brightens the day (assuming there is a change of clothing to hand and the car is parked nearby).

a boy in a playground playing on a swing

The question I am asked most often is, “does he have a special talent?” Well, no – unless you count eating a full plate of pasta in under 30 seconds, or utter fearlessness of anything except small fluffy animals. When motivated (i.e.  he’s spotted someone with ice cream) he can sprint with astounding speed, but we are yet to harness this for any purpose, (or indeed in a straight line). Likewise, he is adept at chewing to pieces anything softer than reinforced concrete but this is only likely to prove useful in the event he needs to escape from a bed that has been tucked too tight.

He loves cuddles and touching faces, and giggles when he knows he is being cheeky (which is surprisingly often).  His best habit is making us laugh, and his worst eating sand.  Beneath the autism he is a delightful, fascinating little boy who is adored by everyone who knows him.

Parents of special needs children are delighted when someone asks about their child, because it is a chance to tell someone more than books ever can.  This is especially true of parents of autistic children.  We have all spent days dissolved in tears, but have spent many more being thankful our child is who and what they are and not what we once wished they could be.  The media quite rightly talks about the hardships of being a parent or carer, but it forgets about the pleasures.  It’s a cliché to say being with a special child is difficult but incredibly rewarding - but it’s true!  We don’t want you to think, “Oh that poor woman, how does she cope?  Thank goodness that’s not me”.  We want you to think, “Is her son autistic?  I wonder what his name is.”

If you are curious enough to stare you are curious enough to ask; come and say hello!  I know that approaching a special child can be scary – you’re not sure what to say or whether to talk directly to the child or to their carer.  So I’ll help you.

Always speak to the child first.  Their understanding is almost certainly better than their reciprocal communication.  If the child can’t (or won’t) respond the carer will do so for them – you’re spared any embarrassment and may well come away having learned something.

What would be embarrassing is to be caught staring!

By: Attila the Mum


Other sites that may be of interest

The National Autistic Society
The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs.

Autism Spectrum
Ten Things Every Child with Autism Wishes You Knew - A very enlightening article by Ellen Notbohm, a freelance writer and parent of a child with autism.


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I have an autistic brother and used to feel much the same way as you. Now when I get odd looks whilst out with him - more and more often, as he now looks like an adult and the disparity can be more apparent - I rarely do anything other than smile at the person. Generally diffuses the situation. It's a shame that people aren't more educated about the normality of these things but it's not really their fault. It's good that you are so inviting about educating people, but I wouldn't guarantee that everyone would be all the time.
*DeeEm  24-Feb-2010 15:05

 
You can never be "cured" of autism .. what an extraordinary thing to say. Whereas I agree with you, elleninlaande, that the term "autistic" has been misused, ADHD is on the autistic spectrum. PTSD - I haven't heard that before, I am a sufferer of PTSD, but am not autistic. My daughter, who has ADHD, displays many autistic traits, and when she was very young, back in the days when ADHD had not even been heard of in this backward country of ours, we thought she had Autism full blown. There are overlaps, so I can understand the misuse, but to say that you can be "cured" is just plain ridiculous. I can understand your frustration.
*Nikki  04-Feb-2010 21:27

 
The term autistic has been misused to describe persons with anything from cerebral allergies and schizophrenia to attention deficient disorder and post traumatic disorder. Sadly, few doctors and educators understand true cases of autism to make a correct diagnosis. So they go with the latest media driven flow. A truly autistic person doesn’t choose to not play or socialize, it’s simply who they are-- not to play or socialize with others—is in itself the core of autism—within oneself. They may show signs of affection or social skills, but it will almost always be brief. FYI: jenny mccarthy's kid was never autistic, is not autistic. Much like the mother who wrote the book about "tony" the allegedly autistic kid she cured, yeah right. Turned out "tony" had a rare cerebral allergy to milk...he was never autistic..and yes, years from now we will all know that McCarthy is yet another FRAUD who poses as a mother of an autistic son who was cured, but the truth is, he never had autism.....what a racket, what a scam , what a disgrace and slap in face to all families who are dealing with authentic autism as you can see on youtube when you type in autism and seizures or autism and self injury.....
*elleninlaande  03-Jan-2010 05:36

 
On a visit to the coast one summer I saw a group of learning disabled children having a great time by the sea. They were the best behaved, sweetest kids on the beach and were just having fun in a totally innocent way.

Two women were watching them; one said "they should keep them locked up" and the other replied "yeah, we shouldn't have to look at them".

By the way, Attila the Mum - great nickname!
*Kit  29-Oct-2009 02:14

 
Our six year old daughter is in a wheelchair for life with cerebral palsy, a normal girl who just can't balance, we get stares from people sometimes, this doesn't bother me much but it really wind's up my wife sometimes and if they stare too much she will say "don't worry it isn't catching"
One thing that does stick out in my mind is after the death of David Camerons disabled son, he made a few public comments about his personal grief and was then accused of using it for getting public sympathy.
I have had a few comments when we first got our £2000-00 charity wheelchair, like I am parading her around the local shopping centre for sympathy (she couldn't stay in a pushchair forever) the large flat floor there is an ideal place to learn how to use a wheelchair.
The worst thing is the csa, who will carry on milking you even though your kid can't walk, only crawl around the house, idle women come first in their eyes.
*Gainsborough lad.  28-Oct-2009 09:31

 
Hi all - long time no post!

Thanks so much for all your comments. Those of you who are lovely know who you are. Those of you who aren't - well, you're entitled to your opinion too, but truly you're wasting your time.

A brief update - Eben no longer strips in public, has learned not to jump into bodies of water and has picked up some Makaton so communicates much better now. We go out to restaurants regularly and even managed the cinema for the first time last week (where amazingly he was the quietest, stillest child in the place!). He still jumps around and flaps when excited though!

I'd love some updates from those of you with your own 'auties' - how are you getting on?
*Attila the Mum  28-Oct-2009 02:56

 
Panki, ignore the insults, it's the attention they crave and they're getting it!!!!!! They can't help being that way, thats why nobody likes them.
*DIGSY  14-Oct-2009 17:35

 
God bless you Attila the Mum!!! I struggle with the same issue. People are becoming more aware of Autism but there are many A-holes and outright rude/ignorant people to deal with. I have fun intimidating them with my own crazy stare if they take it too far. Get's the blood flowing! Cheers!
*panki  13-Oct-2009 20:48

 
Dear Re, Me Do, Do, So,

You are a waste of oxygen. Luckily for you, you can hide behind absurd blog names and poke fun at the weak and those in pain. This is a venue for healing and support, not for abuse. How fortunate for you that you are anonymous. I would not tolerate your kind on the street. Remember that we are in pain. It would be ill advised to run your mouth without the security of your PC. You know that and that's what makes you a particularly pathetic bully.
*panki  13-Oct-2009 20:40

 
I have a step son with mild autism and I completely agree with Hide out. They should be locked up in a home somewhere! They wouldn't even know the difference anyway.
*Smoke  03-Jun-2009 16:31

 
Hide Out- my little brother has Downs. It was something that happened at conception. Not the 'sins' of my father you little sh**.
*Hannie  29-Apr-2009 21:18

 
I cannot believe what I have just read on hideouts comments,god help us all if this is deemed inoffensive and the right way to be.My best friends daughter is autistic and no one in her past family on either side has or ever has had it.As for the sins of the fathers...cop on.The only disabilities are Ignorance,intolerance and hatred.
*steffiw  31-Mar-2009 23:50


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