People who stare at my autistic son
02-September-2010
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People who stare at my autistic son

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Why PEOPLE WHO STARE at my autistic son like he's a purple alien from Planet Zarg?  Didn't your parents teach you any manners?  We know he is odd, and we know he can be noisy - but if he were in a wheelchair you'd give him no more than a quick glance, would you?

Don't be afraid - if you want to know about him, just ask!

My son Eben has what most doctors would call 'moderate to severe' autism and learning difficulties to match;  I would liken his general demeanour to a seven year old body with a very happy hyperactive four year old inside it!  Contrary to the oft-perceived stereotype he is outgoing, affectionate, chatty and loves meeting new people and going to new places.  He lost his hard won verbal skills at the age of four and now can't form words - but that doesn't stop him trying!  And he understands you perfectly if you keep things simple.  He is possibly the happiest little boy I have ever met and has a dimpled smile that makes everyone say "aaah".  So why, when we go out, do people insist on staring?

Admittedly, diving into a fountain fully clothed (because you think the mosaic tiles on the bottom make it look like a swimming pool) may attract a little attention.  As might stripping off in public, or obsessively sitting on drain covers, or licking railings.  Even I find these odd, but such behaviour certainly brightens the day (assuming there is a change of clothing to hand and the car is parked nearby).

a boy in a playground playing on a swing

The question I am asked most often is, “does he have a special talent?” Well, no – unless you count eating a full plate of pasta in under 30 seconds, or utter fearlessness of anything except small fluffy animals. When motivated (i.e.  he’s spotted someone with ice cream) he can sprint with astounding speed, but we are yet to harness this for any purpose, (or indeed in a straight line). Likewise, he is adept at chewing to pieces anything softer than reinforced concrete but this is only likely to prove useful in the event he needs to escape from a bed that has been tucked too tight.

He loves cuddles and touching faces, and giggles when he knows he is being cheeky (which is surprisingly often).  His best habit is making us laugh, and his worst eating sand.  Beneath the autism he is a delightful, fascinating little boy who is adored by everyone who knows him.

Parents of special needs children are delighted when someone asks about their child, because it is a chance to tell someone more than books ever can.  This is especially true of parents of autistic children.  We have all spent days dissolved in tears, but have spent many more being thankful our child is who and what they are and not what we once wished they could be.  The media quite rightly talks about the hardships of being a parent or carer, but it forgets about the pleasures.  It’s a cliché to say being with a special child is difficult but incredibly rewarding - but it’s true!  We don’t want you to think, “Oh that poor woman, how does she cope?  Thank goodness that’s not me”.  We want you to think, “Is her son autistic?  I wonder what his name is.”

If you are curious enough to stare you are curious enough to ask; come and say hello!  I know that approaching a special child can be scary – you’re not sure what to say or whether to talk directly to the child or to their carer.  So I’ll help you.

Always speak to the child first.  Their understanding is almost certainly better than their reciprocal communication.  If the child can’t (or won’t) respond the carer will do so for them – you’re spared any embarrassment and may well come away having learned something.

What would be embarrassing is to be caught staring!

By: Attila the Mum


Other sites that may be of interest

The National Autistic Society
The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs.

Autism Spectrum
Ten Things Every Child with Autism Wishes You Knew - A very enlightening article by Ellen Notbohm, a freelance writer and parent of a child with autism.


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what a great story I always wonder the same when we are out my youngest son has severe regressive autisum and low to moderate aspergers and people always stare we even had a shop owner come out the shop and shout at him because he was licking thier window even though his t shirt says please be pateint I am autistic she demanded we taught our child some manners
*john  29-Jul-2010 09:02

 
Attila the Mum
God bless you.I too was in special classes, dont have Autism, But have NF, I too get stared at alot, I am sort of a freak to kids, and kind of weird, I dont really like the stares but the comments hurt more,Your son is a great little guy, He seems like a happy boy.
*Had it people making fun of the handicapp  07-Jun-2010 00:23

 
Hey Kit, I hope those 2 women were as ugly on the outside as they seem to be on the inside,
I hate people like them who seem to hate the Handicapp. I have NF-Neurofibromatos, its a disorder in the skin where tumors grow, I have the less severe of the 2 and I get stared at alot,
kids laugh at me and call me ugly coworkers dont want much to do with me, I have one good friend who see's me for me and doesnt make me feel like a freak,its one thing to have kids make fun of people who are diffrent but when adults do its pathetic
*Had it with people making fun of the handicapp.  07-Jun-2010 00:10

 
I understand! My 23-year old brother has SEVERE autism. He cannot talk or communicate at all in anyway. When we go out in public, we push him in a wheelchair even though he can walk. When he screams in public, everybody looks at him like he is (just like you said) an alien. It bothers me so much that people cannot understand aautistic people especially those out there who say nasty stuff about how they don't deserve to live, they should be ashamed of themselves! So what if they are born different, it's not their fault, God wanted them to be that way for a specific reason and that's great! So overall, I can definitely relate to you!
*Marz28  18-Apr-2010 21:24

 
I cannot believe some of the disgusting comments I have just read!
I would just like to remind all of you scum bags that have left nasty comments that you or a member of your family can become disabled at any time in life. You could get an illness, or be in an horrific accident. What goes around comes around!
My brother has autism and gets stared at all the time, I am in a wheelchair and get stared at all the time. Im sick of it.
*Clare  10-Apr-2010 15:56

 
I have an autistic brother and used to feel much the same way as you. Now when I get odd looks whilst out with him - more and more often, as he now looks like an adult and the disparity can be more apparent - I rarely do anything other than smile at the person. Generally diffuses the situation. It's a shame that people aren't more educated about the normality of these things but it's not really their fault. It's good that you are so inviting about educating people, but I wouldn't guarantee that everyone would be all the time.
*DeeEm  24-Feb-2010 15:05

 
You can never be "cured" of autism .. what an extraordinary thing to say. Whereas I agree with you, elleninlaande, that the term "autistic" has been misused, ADHD is on the autistic spectrum. PTSD - I haven't heard that before, I am a sufferer of PTSD, but am not autistic. My daughter, who has ADHD, displays many autistic traits, and when she was very young, back in the days when ADHD had not even been heard of in this backward country of ours, we thought she had Autism full blown. There are overlaps, so I can understand the misuse, but to say that you can be "cured" is just plain ridiculous. I can understand your frustration.
*Nikki  04-Feb-2010 21:27

 
The term autistic has been misused to describe persons with anything from cerebral allergies and schizophrenia to attention deficient disorder and post traumatic disorder. Sadly, few doctors and educators understand true cases of autism to make a correct diagnosis. So they go with the latest media driven flow. A truly autistic person doesn’t choose to not play or socialize, it’s simply who they are-- not to play or socialize with others—is in itself the core of autism—within oneself. They may show signs of affection or social skills, but it will almost always be brief. FYI: jenny mccarthy's kid was never autistic, is not autistic. Much like the mother who wrote the book about "tony" the allegedly autistic kid she cured, yeah right. Turned out "tony" had a rare cerebral allergy to milk...he was never autistic..and yes, years from now we will all know that McCarthy is yet another FRAUD who poses as a mother of an autistic son who was cured, but the truth is, he never had autism.....what a racket, what a scam , what a disgrace and slap in face to all families who are dealing with authentic autism as you can see on youtube when you type in autism and seizures or autism and self injury.....
*elleninlaande  03-Jan-2010 05:36

 
On a visit to the coast one summer I saw a group of learning disabled children having a great time by the sea. They were the best behaved, sweetest kids on the beach and were just having fun in a totally innocent way.

Two women were watching them; one said "they should keep them locked up" and the other replied "yeah, we shouldn't have to look at them".

By the way, Attila the Mum - great nickname!
*Kit  29-Oct-2009 02:14

 
Our six year old daughter is in a wheelchair for life with cerebral palsy, a normal girl who just can't balance, we get stares from people sometimes, this doesn't bother me much but it really wind's up my wife sometimes and if they stare too much she will say "don't worry it isn't catching"
One thing that does stick out in my mind is after the death of David Camerons disabled son, he made a few public comments about his personal grief and was then accused of using it for getting public sympathy.
I have had a few comments when we first got our £2000-00 charity wheelchair, like I am parading her around the local shopping centre for sympathy (she couldn't stay in a pushchair forever) the large flat floor there is an ideal place to learn how to use a wheelchair.
The worst thing is the csa, who will carry on milking you even though your kid can't walk, only crawl around the house, idle women come first in their eyes.
*Gainsborough lad.  28-Oct-2009 09:31

 
Hi all - long time no post!

Thanks so much for all your comments. Those of you who are lovely know who you are. Those of you who aren't - well, you're entitled to your opinion too, but truly you're wasting your time.

A brief update - Eben no longer strips in public, has learned not to jump into bodies of water and has picked up some Makaton so communicates much better now. We go out to restaurants regularly and even managed the cinema for the first time last week (where amazingly he was the quietest, stillest child in the place!). He still jumps around and flaps when excited though!

I'd love some updates from those of you with your own 'auties' - how are you getting on?
*Attila the Mum  28-Oct-2009 02:56

 
Panki, ignore the insults, it's the attention they crave and they're getting it!!!!!! They can't help being that way, thats why nobody likes them.
*DIGSY  14-Oct-2009 17:35


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